PMS-Förbundet | PMS-förbundet 1 år idag!
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PMS-förbundet 1 år idag!

pmsforbundet

 

Nu har det gått precis ett år sen vi drog igång PMS-förbundet. Vi startade för att alla vi som lever med PMS och PMDS ska kunna ha någon som för vår talan men också för att sprida information och minska den skuld och skam som det innebär för oss som lever med denna dolda sjukdom.

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Under det första året har vi skapat denna hemsida (som håller på att uppdateras löpande), det har arrangerats två PMS-mingel (ett i Stockholm och ett i Malmö) och vi har haft ett årsmöte med ett 40-tal deltagare där vi valde en styrelse och fick inspiration och pepp av en av Sveriges bästa föreläsare, Elaine Eksvärd. Vi har också startat Instagramkonto och Facebooksida som uppdateras flitigt och vi har bildat en diskussionsgrupp på Facebook som nu är uppe i snart 1000 medlemmar. För att inte nämna alla intervjuer och faktakunskap vi bistått pressen med.

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Vad är på gång?
Den 21/11 arrangerar vi ett PMS-seminarium i Stockholm. Vi har bjudit in några av Sveriges bästa läkare, dietister och psykologer med PMS-kompetens. Vi har också bjudit in både kända och okända personer som ska få dela med sig av sina erfarenheter av att leva med PMS/PMDS eller vara anhörig till någon med PMS/PMDS.

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Vi kommer under hösten prioritera att hemsidan ska bli klar med bl.a. information till läkare och gynekologer som man kan vända sig till men också uppdateringar kring forskningsläget och försöka sätta ihop fler lokala grupper.

Stort tack till alla er som betalat medlemsavgiften och stöder oss i vårt arbete! Vi jobbar alla ideellt och det är ibland väldigt tufft att sköta arbetet när vi alla har PMDS, så ert stöd betyder allt. 

Boka in den 21:e november så ses vi! Och vill du vara med att jobba med hemsida, konferensen eller kanske göra nått helt annat? Hör av dig till oss, vi behöver all hjälp vi kan få.

Stora kramar Karin Adelsköld, generalsekreterare PMS-förbundet.

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